Tag: health

Girls on the Pitch: Making Change Happen for Women’s Football in Brazil

Posted on by George Thomas

Dr Mark Biram tells us about his project to empower young girls in Brazil through participation in football. Mark is working closely with Brazilian NGO Meninas em Campo (Girls on the Pitch), as well as leading academic on women’s sport in Brazil, Silvana Goellner, to achieve this aim. The project has recently received an AHRC Impact Acceleration Account award, aligns with the University’s efforts to achieve social justice both at home and abroad, and is yet another example of how arts and humanities research can influence change for the better.

Logo for Meninas Em Campo, which features the words in large yellow typeface against a dark background with a silhouette of a girl heading a football in the air in the middle of the picture.
Meninas Em Campo, translates as Girls on the Pitch in Portuguese

With help from the AHRC Impact Acceleration Account, in collaboration with a Brazilian NGO Meninas em Campo and leading academic on women’s sport in Brazil, Silvana Goellner, we are designing a project aimed at the empowerment of young girls through participation in football from a young age. Our project will raise awareness of crucial social, economic and logistical barriers which currently discourage or prevent girls from participating in football, providing practitioners with a blueprint to replicate the work of Meninas Em Campo (Girls on the Pitch), a project which uses football as a vehicle for the empowerment of girls and to help them negotiate the difficulties of adolescence.

Meninas Em Campo has proved itself to be a highly successful proactive example of promoting gender equality through both discourse and practice. It is a non-profit organisation located in Butantã, São Paulo which offers a space for 9-17 year old girls to develop as footballers. The project is financed by Colégio Santa Cruz and supported by the University of São Paulo. Meninas Em Campo is the largest grassroots socially motivated girls football project, outside of those of the big clubs.

Why is this research important?

Whilst carrying out ethnographic research with Santos FC Women in 2018 & 2019 I became aware of the lack of formalised spaces for girls to play the game from an early age. At present, all major Brazilian clubs have a women’s team, in order to comply with national and international regulations. However, there is still a lacuna in provision for younger girls. Projects like Meninas em Campo provide a blueprint which can be replicated elsewhere.

What does the research project involve?

The project involves producing and disseminating materials which practitioners can use to attract girls to playing the game in the first instance, and to engage them with the wider issues attached to gender and other inequalities through the lens of sport. The project intends to engage with secondary schools across Brazil showcasing the best practices of Meninas em Campo and providing the schools with a range of materials which they can use to develop their own provision for girls’ football.

What are the next steps for Girls on the Pitch?

After the initial scoping trip in January, we have already applied for a further round of funding with a view to producing a guide for practitioners on how best to optimise opportunities to raise issues of gender inequality, problems faced by girls during adolescence and how best to engage the public and private sector into investing in the women’s game. This guide is led by the findings of Dr. Mark Biram’s PhD thesis Women’s Club Football in Brazil and Colombia: A Critical Analysis of Players, Media and Institutions and by the work of Hispanic, Portuguese & Latin American Studies PhD candidate Júlia Belas Trindade, who has published a series of Guardian articles on the growth of the women’s game.

We wish Mark every success with Girls on the Pitch and look forward to seeing how the research project develops.

Dr Mark Biram is an early career researcher and teaching associate in the Department of Hispanic, Portuguese and Latin American Studies. To find out more about Mark’s research, please email mark.biram@bristol.ac.uk.

‘It’s hard to think…’: Introducing the EPIC project studying better ways to hear patient voices

Posted on by George Thomas

By Professor Havi Carel, Department of Philosophy

A fellow patient was talking about a consultation that followed an examination, when she was still wearing the hospital gown. She felt that it was hard for her to offer her opinions, say what she wanted, and ask questions about her condition, because, as she poignantly put it, ‘it’s hard to think without your pants on!’. 

How do we think, speak, ask questions and convey our views in different situations? This brief account opens questions about how patients are listened to, and how we can work together with health professionals to ensure that they are not only listened to but that what they say plays a key role in decision making processes in healthcare contexts. 

Some patients have reported that their testimonies and perspectives are ignored, dismissed, or explained away by the healthcare profession. These experiences are classified by philosophers as ‘epistemic injustices’ because, in some cases, they are based on prejudice and can jeopardize patient care and undermine trust in healthcare staff and systems.  

A new project I am leading with collaborators from the universities of Nottingham, Birmingham, and Swansea – ‘epistemic injustice in healthcare’ (EPIC) – will study this problem is its general form: why some patient voices are ignored and what healthcare systems can do to overcome this problem. The project is funded by a Wellcome Discovery Award, and will run for six years, with a budget of £2.6 million. 

The project will include case studies from a range of illnesses, theoretical research, events, focus groups, the creation of a network with patients and health professionals, postdoctoral positions, summer schools, and publications. The project aims to identify practical measures for the benefit of patients and healthcare practitioners alike. 

The core team also includes Professor Sheelagh McGuinness (Bristol), an authority on gender and the law in relation to healthcare, Professor Lisa Bortolotti (Birmingham), an expert in philosophy and psychiatry, Professor Matthew Broome (Birmingham), an academic NHS psychiatrist, and Dr Ian James Kidd (Nottingham) whose joint work with me pioneered the study of epistemic injustices in healthcare. 

The EPIC team will be completed by eight postdoctoral researchers and a range of other researchers and collaborators from Swansea, City and Aston Universities, and the Universities of Bologna and Ferrara in Italy, making a team of around 30 researchers. 

The six case studies will include labour pain, vaccination in immigrant children, young people and mental health, neurodiversity, cancer and depression, and dementia. 

Professor Broome will lead a case study on youth mental health. He said: “This project will help young people with psychosis develop better relationships with clinicians, and to gain agency in determining their treatment, and ultimately improve outcomes.” 

EPIC will also work closely with patients and service users. Professor Bortolotti added: “It is especially important for people with a mental health diagnosis to contribute to shared knowledge concerning their symptoms and treatment. We will challenge the assumption that they are irrational or disconnected from reality, and so not worthy of being listened to.” 

Dr Kidd said: “EPIC will also involve theoretical work elaborating on the concept of epistemic injustice. We have greatly expanded resources for conceptualising the variety of epistemic injustices. EPIC will contribute to that enrichment as well as benefitting from it.” 

The project will begin in September 2023 and we wish Havi and the rest of the team every success.

Professor Havi Carel, Department of Philosophy, is a philosopher of medicine and an expert on the experience of illness. 

The Centre for Health, Humanities and Science: Who we are and what we do

Posted on by George Thomas

By Professor Ulrika Maude, Director of the Centre for Health, Humanities and Science

The Centre for Health, Humanities and Science (CHHS) focuses on interdisciplinary and multidisciplinary research at the intersection of the humanities, health, medicine, and science. The CHHS was inaugurated in 2017 and it has almost two hundred members from across Bristol University’s six Faculties and from the NHS. It runs a regular research seminar with speakers from across the UK as well as from abroad, and hosts workshops, an annual lecture, public debates, mentoring lunches, funding workshops, postgraduate-led activities, and university-wide networking events.

CHHS members are at the forefront of developments in medical humanities research, disseminating their results through academic publications, events and public engagement activities. With the support of the Wellcome Trust and the Elizabeth Blackwell Institute, the CHHS has provided seed-corn funding for a diverse range of research projects, including grief and mourning; the senses; chronic conditions and their narratives; and health and illness in colonial film archives.

One CHHS seedcorn-funded project, Becoming Elizabeth Blackwell, centres on the Bristol-born doctor and social campaigner Elizabeth Blackwell (1821-1910) – the first British woman to be registered as a doctor by the General Medical Council, in 1859. The project has brought together Bristol academics, a playwright and theatre director, medical students and others to produce a playscript that will re-tell and celebrate Blackwell’s life and achievements.

Several CHHS members are currently involved in collectively writing a book on Key Concepts in Medical Humanities (forthcoming, 2024), which will provide a critical introduction to concepts such as ‘health’, ‘illness’, ‘contagion’, ‘feeling’, ‘neurodiversity’, ‘disability’, and ‘dying’, as well as offering chapters on key methodologies such as ‘Black Health Humanities’, ‘Graphic Medicine’, ‘Medicine and the Arts’ and ‘Narrative Medicine’. ‘Health’, for instance, is by no means a transparent concept, and the CHHS’s former Benjamin Meeker Professor, Alexandra Parvan, argues that ‘health cannot be taken merely as the outcome of biological tests or a clean medical sheet, nor should it necessarily be understood as a state restricted to the those designated as clinically healthy.’ Rather, Parvan argues for a nuanced conception of health, one that is ‘accessible to all’.

Current large-scale research initiatives at the CHHS include Sensing Spaces of Healthcare, led by historian Victoria Bates. Poor hospital design has a negative impact on healthcare outcomes, and the project seeks to rethink the NHS Hospital through the body and the senses, focusing on the lived experience of patients, visitors, and hospital staff with the aim of improving hospital design. And a multidisciplinary team led by philosopher Havi Carel has recently won Wellcome Trust funding for a six-year project on Epistemic Injustice in Healthcare (EPIC), which aims to address inequalities. Havi says,

‘Some patients have reported that their testimonies and perspectives are ignored, dismissed, or explained away by the healthcare profession. These experiences are classified by philosophers as ‘epistemic injustices’ because, in some cases, they are based on prejudice and can jeopardise patient care and undermine trust in healthcare staff and systems.’

EPIC aims to identify practical measures that can be taken for the benefit of patients and healthcare practitioners alike.

The Good Grief Festival, inaugurated in 2020, focuses on supporting those affected by the shared experience of bereavement and grief – topics that have for too long been considered taboo. Led by Lesel Dawson (English) and Lucy Selman (Bristol Medical School), ‘Good Grief’ regularly organises talks, interviews, webinars and workshops for the general public concentrating on the ways in which the crushing experience of grief can be shared and managed.

Notable projects from recent years include The Heart of the Matter exhibition, which toured the UK in 2018. The exhibition grew from artist Sofie Layton’s residency at Great Ormond Street Hospital for Children and was co-organised by CHHS Advisory Board member and bioengineer Giovanni Biglino. The artworks in the exhibition were inspired by young patients with heart conditions – as well as their families and doctors – and it invited visitors to discover the extraordinary complexity, intricacy and beauty of the heart as an organ.

For many years now the Centre has been involved in medical education through the Intercalated BA in Medical Humanities, an optional one-year degree for students of Medicine and Veterinary Science, taught jointly by English and Philosophy and directed by Advisory Board member, John Lee (English). With a wide range of international collaborators and an International Advisory Board, our members are also active in public engagement work through collaborations with the NHS, patient groups, and charities as well as museums, public gardens, libraries, and other cultural organisations.

For more information about the CHHS, please contact the Centre’s administrator, Elizabeth Gourd (e.c.gourd@bristol.ac.uk).

Professor Ulrika Maude, Centre for Health, Humanities and Science Director

Where is the (cycling) revolution?

Posted on by Kathryn Pintus

By Professor Martin Hurcombe, Professor of French Studies, School of Modern Languages

It’s a beautiful Saturday morning in May 2020. The sun is glinting off Chew Lake. There is the sound of birds I’m too ignorant to know the names of. And on both sides of the road there is a steady stream of cyclists. Not just the regular MAMILs* like me who you’ll always find out here this time of day, but cyclists of all ages and sizes, many of them on bikes a lot newer than mine. I count them over an hour; there are six cyclists for every motorist.

During those awful first weeks of lockdown, many of us found some respite from the horrors unfolding around us in our ability to cycle, run or just walk away from the homes and the online world to which we were otherwise confined. Bike sales went through the roof as we all realised that, once you take away the bulk of the traffic, roads make pretty good cycle paths and cycling is both an efficient and pleasant way of getting about (particularly when the sun shines).

There was also a lot of serious debate about how the pandemic would transform our working lives. Most of us would probably be working from home for years. Time saved by not commuting could be reinvested in leisure; not the constant consumption of those tiresome pre-pandemic weekends spent trudging around out-of-town retail outlets, but what researchers call active leisure (running, walking, cycling, etc), activities that we could now integrate into our daily lives. Perhaps, despite the dystopia of a health service under constant strain, we could emerge healthier and happier as a nation. ‘A better world is possible’, the slogan painted onto the main road through Long Ashton declared as I cycled towards it on my first trip into Bristol coming out of lockdown.

Yellow heart painted on road surface with image of a bike within the heart

We caught some of this spirit in Active in Lockdown (AIL), a project that Dr Melanie Chalder (Bristol Medical School) and I ran in collaboration with Knowle West Media Centre. By collecting social media posts, and helping volunteers to capture and reflect upon their experiences of cycling, running, or walking during the three national lockdowns, AIL attempted to record the huge surge in active leisure in Bristol and the surrounding area.

I still see that slogan as I commute through Long Ashton on my bike. It’s beginning to re-emerge after being painted over by the authorities eager perhaps not to raise our hopes. It’s re-emerging because the paint used to cover it is being eroded by the cars that have now returned to our roads. Traffic levels are rapidly approaching pre-pandemic levels and congestion is returning to our city centres. It is hard to remember that, only a year ago, we stood on our doorsteps applauding keyworkers and swearing to protect the NHS. In our headlong rush to get back to our old way of living, though, we seem determined as a society to spend even more time in its care.

So, I’m left asking: Where are all the lovely new bikes of 2020 and the revolution we dared to dream of? We hope that global leaders will emerge from COP26 with the roadmap to a world that looks better than the course we are currently set upon. But is ‘A world not as bad as it could have been’ our only hope? And what is it that towns, employers, and individuals can do to help our roads contribute to our wellbeing rather than to be a major source of global decline? The stories captured by AIL can help here. They tell us about the wellbeing that comes with active leisure, but also the conditions needed to facilitate it: safe, clean, congestion-free spaces available for all.

*Middle-Aged Man in Lycra