Navigating Authenticity: Hearing from Disabled Children’s Authors

By Daniela Rozental, PhD Creative Writing candidate, School of Humanities

In the latest entry to our series spotlighting PGR summer internship projects, PhD Creative writing candidate Daniela Rozental tells us about working with Dr Jo Nadin to explore the role a disabled author’s lived experience plays in their writing. By conducting in-depth interviews with published disabled children’s authors, the research examined key issues such as accuracy and authenticity, ableism and internalised ableism, providing valuable insights that will help empower disabled writers in the future.

One of the key issues I have identified during my practice-led creative writing PhD is my struggle as a disabled children’s writer to find a balance between writing authentically and writing responsibly. My thesis explores my own writing process, but I was keen to look further and hear from other disabled writers.

Over the summer I was fortunate enough to participate in the Arts Faculty PGR summer internship scheme. I knew some other students who had taken part in previous years, but it was only now in the third year of my PhD that I felt confident and prepared enough to apply for it myself. Alongside Dr Jo Nadin, one of my PhD supervisors, we took the opportunity to work on a research project we had both been wanting to undertake for quite some time.

Good Different by Meg Eden Kuyatt, one of the authors interviewed by Daniela & Jo, has been praised for its authentic portrayal of autism, helping young people to appreciate neurodiversity.

Our main goal for the project was to interview disabled children’s authors on their attitudes towards writing stories that incorporate elements of their own lived experiences. We also sought their thoughts on authentic and responsible writing, ableism and accessibility in the publishing industry, and what advice they had to offer other disabled writers. Our topic was unique enough to stand alone from my PhD research, but relevant enough that our findings might inform my thesis going forward, as well as Jo’s own creative and critical practice.

When the internship began we were proactive and eager to get started, immediately getting to work on establishing our research objectives, drafting interview questions, and planning out the best ways to disseminate our eventual findings. It wasn’t long, however, before we reached our first stumbling block –ethical approval.

The internship was my first experience conducting interviews as academic research, so I was learning a lot on the job. The process of submitting an ethics application and waiting for approval took a lot longer than I had anticipated. My advice to future interns conducting this sort of research would be to put in your ethics application before the internship start date in order to maximize your internship experience.

Rapids by Anna Bowles and Cursed by Karol Ruth Silverstein bring attention to the lived experiences of disabled individuals. Both novelists were interviewed by Daniela and Jo.

Nevertheless, once we did receive ethical approval, we immediately got to work seeking participants and setting up interview dates. All in all we were able to secure six interviews (five over video call and one over email). The interview process was the real highlight of the internship for me. It was an honour to meet with our participants and create a safe space for them to share their experiences with us. I felt myself grow in confidence as the interviews progressed, and found myself falling in love with conducting interview research. I would leave one interview buzzing with ideas and eager to get started on the next. We gained some really valuable insights that will hopefully go on to help empower disabled writers in the future.

This research might not have been possible without the internship scheme, and I am very grateful to the Arts Faculty, and to Jo Nadin in particular, for the opportunity to work on something so meaningful.

Daniela Rozental is a PhD Creative Writing candidate, investigating ways for disabled authors to write authentic and responsible depictions of disability in children’s fiction. Daniela and Jo will be presenting some of their findings at Leaf Journal’s ‘On Writing for Young People’ conference (24-25 October). To find out more about the project, contact xs21605@bristol.ac.uk. To read more PGR summer internship projects, visit ArtsMatter.

Publishing Success for Creative Writing PhD Student Ash Bond – Peregrine Quinn

By Ash Bond, PhD Creative Writing student, School of Humanities

As the first proofs of her debut novel arrive in bookshops, PhD Creative Writing student Ash Bond introduces us to the wonderful world of Peregrine Quinn and explains how her time at Bristol has influenced her writing.

My debut novel Peregrine Quinn and the Cosmic Realm is the first in a fantasy series, aimed at – primarily – an audience of nine to twelve-year-olds, what those in the publishing sphere refer to as ‘Middle Grade’. Middle Grade is where you will find The Chronicles of Narnia, Artemis Fowl, and Percy Jackson. It is also where you used to find Harry Potter, but now of course he gets his very own section (with matching rucksacks and light-up pens).

 

The idea that a magical world is just a wardrobe or a train platform away is commonplace on these shelves. In Middle Grade books if you say the right spells, tap the right rock, or mess with the wrong fairy, you could end up – quite literally – anywhere. In Peregrine Quinn, the entrance to the Cosmic Realm lies behind a bookshelf in a library (I am a writer with a vivid imagination, but I am also an academic and, as the adage goes, write what you know). It is in one of these libraries where the first book begins, with Peregrine and her godfather Daedalus breaking into Portal Number Nine in the Bodleian Library, Oxford.

One of my greatest joys in writing fantasy books for children is in framing these opportunities for the reader to look at this world, a world that can often appear so devoid of wonder, with renewed curiosity. Is that person on the Tube looking at a map of the London Underground, or the Under-Underground? Check next time, you just never know.


“The weaving of myth and imagination, of research and creativity, is a skill that the Creative Writing PhD at Bristol offers much practice in”


As I transition into the second year of my PhD in Creative Writing at the University of Bristol, I am also moving onto write the second in the Peregrine series. In this second book, the library door is opened wider, and the reader is invited further into the Cosmic Realm. As the world expands, I find myself drawing more and more upon the mythology that forms the basis of much of Peregrine’s universe, a universe that is at once both familiar, and deeply strange. Hekate for example, the classical goddess of witchcraft, in Peregrine’s world runs HekTek Laboratories and specialises in poisons. Daedalus, the architect who designed Minos’s famous labyrinth, in this novel has designed the portal system that connects the Terran Realm (Earth) with that of the Cosmic Realm (Olympus).

The weaving of myth and imagination, of research and creativity, is a skill that the Creative Writing PhD at Bristol offers much practice in. The Creative Writing PhD itself is made up of two strands: one creative and one critical, and is designed so that both strands complement and elevate each other. Like all PhD students, I am lucky enough to have two supervisors; one in Creative Writing, Dr Joanna Nadin, and one in Myth, Dr Vanda Zajko. Both of my supervisors are incredibly generous with their support and rigorous in their feedback, offering me the opportunity to grow as both a writer and as an academic.

The second book is only half written, and with at least one more book to write in this series I am beyond grateful for the consistent opportunities for inspiration – mythological and otherwise – that are offered by the dynamic, interdisciplinary academic environment provided by the university. And while I am very much at the beginning of both my PhD and my publication journey, I look forward to working with Bristol University as Peregrine’s adventure continues.

Ash Bond is a PhD Creative Writing student who recently secured a three-book deal with Piccadilly Press to bring her Peregrine Quinn series to life. The first book, Peregrine Quinn and the Cosmic Realm, will be published in April 2024 by Piccadilly Press which you can pre-order now. To find out more about Ash’s research, please email xn22400@bristol.ac.uk.

Place and Space in the Early Modern World Workshop, 10 May 2023 – Early Modern Studies Research Group

By Dr Sebastiaan Verweij, Senior Lecturer in Late Medieval and Early Modern Literature, and Amy Smith, PhD History candidate

To continue our Faculty Research Centre and Group catch-ups, Dr Sebastiaan Verweij and PhD History candidate Amy Smith tell us about the highly innovative and interdisciplinary May workshop put on by the Early Modern Studies research group.

On 10 May, the Early Modern Studies (EMS) research group ran a workshop: ‘Place and Space in the Early Modern World’. Place and Space studies, including attention to landscape and environment, cuts through the research activities of EMS members in many different disciplines (including English, History, History of Art, Modern Languages, Theatre, Philosophy, Archaeology), and the workshop was organised as a way to share research methods, materials, and findings. Among our c. 40 delegates were also five colleagues from the Universities of Exeter and Cardiff, in part because EMS is keen to develop research collaboration with members of GW4, a research alliance group made up of the universities of Bristol, Bath, Cardiff and Exeter. We were also joined by PhD students in the Faculty currently on the South, West and Wales Doctoral Training Partnership (SWWDTP) scholarships (with thanks for some additional funding from SWWDTP!).

Dr Sebastiaan Verweij opens the ‘Place and Space in the Early Modern World’ workshop

Most of the workshop took the form of five-minute flashpapers, delivered by 17 colleagues in short panels. For any academic researcher to stop talking at the five-minute mark is no easy feat. However, all speakers deliver punchy, thought-provoking, and cutting-edge papers on diverse topics that felt nonetheless connected and in immediate conversation with others on the day. Topics included sea board spaces, Arthurian landscapes, castle gardens as women’s spaces, portable places and soil in cemeteries, British cathedral precincts, recreating the perambulation of Bristol’s city boundaries, flood lands, Italian urban space, dramatic space in the early modern theatre, the spaces of city comedy, urban space in Manilla, the philosophical precepts of space in time from Aristotle to Newton, the space of tragedy, and what urban planners refer to as ‘Space Left Over After Planning’. The day was concluded with an interdisciplinary and wide-ranging keynote address by Professor Nicola Whyte, a social and landscape historian at Exeter, on ‘Sacred landscapes and the subterranean imagination’, which took in Renaissance Italian painting, contemporary art, the seventeenth-century travel journals of Celia Fiennes, and heritage studies, as a way to understand premodern and contemporary response and approach to the landscapes that lie beneath our feet.

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The workshop left us feeling like there was a great deal more to discuss, and so EMS has resolved to work out a way in which conversations can continue: perhaps in the form of future meetings, and through exploration of funding opportunities such as those offered by GW4, in order to organise more ambitious events (conferences, symposia, or collaborations beyond the university) 

The PGR perspective by Amy Smith, PhD History candidate

PGR students (postgraduate research students) often chat about how ‘at home’ we feel in the School of Humanities. Whether weve been kicking around Bristol for years or only just joined, we all feel welcome at higher level academic events across the department. The Place and Space workshop on May 10th was no different. With so many stimulating topics, we joined in lively Q&A sessions and indulged in the sacred landscapes explored in Nicola Whyte’s keynote. 

It was especially inspiring to see recently graduated doctoral students speaking alongside academics with a long publishing record. With several of us in the latter stages of our doctorates, it was a comforting glimpse into a potential future. Next time, I wouldn’t be surprised if we see a number of PGR faces on the panels as we start to develop our scholarly profiles within the University and beyond. 

The workshop was made possible by Faculty of Arts research group core funding, some additional funds from the Faculty, and a travel subvention for SWWDTP students.  

The Early Modern Studies Research Group aspires to generate a sense of community for scholars from across the faculty (and beyond) who work on some aspect of the period from c.1400 to c.1800. To find out more about the Group’s activities, research and to join the mailing list, please contact s.verweij@bristol.ac.uk or richard.stone@bristol.ac.uk.

Introducing the ‘Remaking Britain’ project in South Asian Heritage Month

By Professor Sumita Mukherjee, Dr Florian Stadtler, Dr Aleena Din, Dr Rehana Ahmed and Dr Maya Parmar

We’re excited to launch the new project Remaking Britain: South Asian Connections and Networks, 1830s to the present. Remaking Britain is an AHRC-funded research project led by the University of Bristol (Sumita Mukherjee, PI and Florian Stadtler, Co-I) and Queen Mary University of London (Rehana Ahmed, Co-I) in partnership with the British Library. Aleena Din (Bristol) and Maya Parmar (QMUL) are researchers on the project. 

Remaking Britain will reveal the significance of South Asian people and communities as agents of change to Britain’s cultural, economic, political and social life from the period of empire in the 1830s to the present. Through the exploration of archival records and the capturing of oral histories, the project will produce a free, interactive and widely accessible digital resource with accompanying learning materials and oral history interviews, designed for researchers of all types from academics to community and family historians, to interested members of the public.  

We are working closely with the Bristol Research IT team, led by Tessa Alexander, with Mike Jones, as well as user experience consultant Stu Church and web designer Tom Waterhouse. This resource, with roughly 750 entries, will be launched in the summer of 2025. 

To mark South Asian Heritage Month, which takes place between 18th July-17th August, we have spotlighted five individuals, events and organisations which will feature in our digital resource.  

Atiya Fyzee (1877-1967), author, social reformer and arts patron

Image of Atiya Fyzee wearing a head-covering light-colored veil with a pearl ornament, and an embroidered/jeweled bodice.
Atiya Fyzee. Source: Basanta Koomar Roy, “Picturesque India”, The Mentor vol. 9 (May 1, 1921).

As a youth, Atiya was involved in women’s organisations and made contributions to reformist journals for Muslim women, including Tahzib un-niswan (Lahore) and Khatun (Aligarh). She was sent to London by her parents for an education and undertook a teaching qualification at Maria Grey Training College. While in London, Atiya wrote a travel diary which documented her networks and connections in Britain. This was later published as Zamanai-tahsil (A Time of Education) in 1921.  

During her short time in Britain, she became part of influential social networks, travelled across Europe and made significant cultural contributions through her groundbreaking observations of life as a Muslim woman in early 20th century Britain.  

 

Amrit Kaur (1889-1964), activist and politician

Image of Rajkumari Amrit Kaur, from a 1936 issue of ''The Indian Listener''. Amrit has her head covered with a shawl and is sat down looking towards the camera.
Amrit Kaur. Source: “Rajkumari Amrit Kaur”, The Indian Listener (November 7, 1936): 1096.

Rajkumari Amrit Kaur was a leading member of the Indian suffrage movement in the 1920s and 1930s, visiting London numerous times to campaign for Indian women’s rights, and went on to become Independent India’s first female cabinet minister.

Amrit Kaur was the first Indian to study at Sherborne School for Girls in Dorset. She joined the school in 1902, following the coronation of Edward VII, and left in 1906 as Head Girl and Captain of Games. Amrit Kaur also served as one of Mahatma Gandhi’s private secretaries for 16 years and was an active member of the non-cooperation movement. In 1950, her suffrage campaigning saw success as the new constitution of India enfranchised all adult men and women over the age of 21. 

 

 

Chuni Lal Katial (1898-1978), doctor and politician 

Chuni Lal Katial graduated with a degree in medicine from Lahore University, and then continued his studies in Liverpool in public health and tropical medicine in 1927. After moving to London, he initially worked as a doctor in Canning Town, and later set up a surgery in Finsbury, attending mainly to working class communities. He was elected as a councillor for the Labour Party in 1934, and in 1938 he became the first South Asian mayor in the UK. He was a driving force as Chairman of the Public Health Committee in the setting up of the pioneering Finsbury Health Centre, which offered a range of health facilities all in one location, including a tuberculosis clinic, dentist and women’s clinic. During the Second World War, Katial was a civil defence medical officer. 

Katial was also heavily involved with the campaigning pressure group the India League. During the Second Round Table Conference in 1931, he became Gandhi’s chaperone in London, and a famous meeting between Gandhi and Charlie Chaplin took place at his house.  

Embed from Getty Images

M K Gandhi meeting actor, Charlie Chaplin, in London’s East End. Also in the picture from left to right are: Dr Katial and the poet, Sarojini Naidu, 22nd September 1931 (Photo by Popperfoto via Getty Images/Getty Images) 

 

Indian Writing (1940-45) 

South Asian writers played a significant part in London’s literary and political life in the early twentieth century. One node of a substantial network which connected South Asian, British and other anti-colonial writers, intellectuals and activists was the magazine Indian Writing (1940-45), edited by Iqbal Singh, Ahmed Ali, Krishnarao Shelvankar and Alagu Subramaniam. Run from Sasadhar Sinha’s Bibliophile Bookshop, located just a stone’s throw from the British Museum at 16 Little Russell Street, the magazine published short fiction, non-fiction and book reviews. On the cusp of Indian independence, it brought together fierce political critique and literary talent at the heart of the imperial metropolis. 

Image of an advertisement for Indian Writing magazine. The advertisement reads: 'Indian Writing: A New Quarterly. The spring number contains stories, articles, and reviews by Mulk Raj Anand, Iqbal Singh, K. S. Shelvankar, Raja Rao, Ahmed Ali, Sarat Chandra Chatterjee, A. Subramaniam, Cedric Dover, and others.'
Advertisement for Indian Writing, published in the magazine, Life and Letters and the London Mercury and Bookman [Shelfmark: P.P.5939.bgf.; Courtesy of the British Library]
 

 

 

 

 

 

 

 

 

 

 

 

 

South Asians and the NHS

The NHS as we know it today has been built – and continues to be sustained – by migrant contributions. South Asians have played a major role in this. But we can place South Asians in the medical profession in Britain, long before the NHS was formed. Bari Chohan, who shared his family history for the Millenium Memory Bank (MMB), described how his family arrived in England in the 1870s, having practiced homeopathy and opthalmics on the subcontinent. They then opened medical clinics all over England. Bari’s great uncle Dr Chirag Din Chohan, who was a hakim (practitioner of alternative medicine) and an eye specialist, opened his first practice in Harrogate in the early 1920s. He later moved to his wife Florence’s hometown of Middlesbrough in 1925 where, in 1933, he opened a practice on Kensington Road. In 1937, Dr Chohan opened a second practice on nearby Linthorpe Road.  

Embed from Getty Images

An Indian doctor examines a patient, UK, October 1955. Original publication: Picture Post – 8572 – Indians in London unpub. (Photo by Thurston Hopkins/Picture Post/Hulton Archive/Getty Images)] 

The team chose to spotlight these lives and organisations as they showcase the wide range of interests of the project including gender, literary and cultural life, political activism and campaigning, religion, as well as workers’ experiences  

Contact us

We’d love to hear from anyone with project queries, expressions of interest in oral history participation, or any information relating to the rich history of South Asians in Britain from the 1830s to the present. 

To contact the project team, please email remaking-britain-project@bristol.ac.uk.

You can find more information on how to contact us on our website, including our Facebook and Twitter pages.

Performing Shakespeare at Sea – The Hamlet Voyage

By Dr Laurence Publicover, Senior Lecturer in English, School of Humanities

Dr Laurence Publicover discusses his contribution to a new play, The Hamlet Voyage, performed at the Bristol Harbour Festival in 2022. The project received an AHRC Impact Acceleration Account Award and underlines the positive social influence arts and humanities research can effect.

The Hamlet Voyage performed aboard The Matthew in Bristol. Image Credit: Edward Felton

In January 2021, I held a video conference call with a Bristol-based American theatre director named Ben Prusiner. For some years, it turned out, both of us had been intrigued by the enigmatic evidence surrounding a specific performance of Shakespeare’s Hamlet: one supposed to have taken place aboard an East India Company (EIC) ship off the coast of Sierra Leone in 1607.

Shipboard theatricals

If this performance did take place—and its reality continues to be the subject of debate—then it is not only the first recorded performance of Shakespeare outside Europe; it is the first recorded performance, anywhere, of Hamlet. (Shakespeare’s tragedy was written and first performed around 1600, and versions of it were published in 1603 and then 1604-5, but there are no surviving records of specific performances before 1607.) To make things even more intriguing, the voyage on which this performance may or may not have taken place involved the first English ship to reach mainland India—a region that the EIC, at this point a fledging enterprise, would later rule.

All this interests me not only because I work on Shakespeare, but also because, in recent years, I have become interested in what people read, write, and perform on board ships; in fact, before Ben and I made contact, I had alluded to the episode off the coast of Sierra Leone in the introduction to a volume of essays on this topic.

The Hamlet Voyage

Ben didn’t simply want to talk to a fellow Shakespeare enthusiast; he wanted my help in developing a play about the possible performance of Hamlet. With staggering energy and imagination, he then realised this vision over the following eighteen months, commissioning a script from the British-Nigerian playwright Rex Obano (who had written previously on Africa and early modern England, and who had also, before becoming a playwright, been an actor with the Royal Shakespeare Company) and involving a team of academics and creative practitioners with expertise relating to the story. With the help of Jiamiao Chen, who worked as a research assistant, my role in the project was to locate and help interpret primary and secondary literature concerning the third voyage of the East India Company—and in addition, to help Rex and Ben think about shipboard theatricals and about the texts of Hamlet with which the English sailors might have been working.

We trialled the first draft of Rex’s script at the University of Bristol’s Department of Theatre over the summer of 2021, working with student volunteers, and then ran a second series of workshops that autumn at the Trinity Centre in Easton, where Ben invited members of Bristol’s West African and South Asian communities to watch rehearsals and ask questions. With support from several funding bodies, including Arts Council England, the University of Bristol’s Participatory Research Fund and its Impact Acceleration Fund, and the Fenton Arts Trust, The Hamlet Voyage—as the play was titled—went into rehearsal in London in the early summer of 2022. I travelled to London to speak to the cast about the historical background of the play and about why (and how) people might have performed Shakespeare during a long voyage; in addition, I helped the actors playing English sailors to rehearse the scenes from Shakespeare that Rex had incorporated into his play.

The Bristol Harbour Festival

The Hamlet Voyage premiered at the 2022 Bristol Harbour Festival on board the Matthew, the replica of the ship on which John Cabot sailed from Bristol to Newfoundland in 1497; it then transferred to London for a run at the Bridewell Theatre. On the morning of the first performance, Rex and I spoke about the play on BBC Radio Bristol, and the interviewer asked the question that I’ve been asked countless times since: Did this performance of Hamlet really happen? I direct anyone wishing for a response to that question to the piece I wrote for the project’s website.

The Hamlet Voyage performed at the Bristol Harbour Festival, 2022. Image Credit: Edward Felton

The Hamlet Voyage performed aboard The Matthew in Bristol. Image Credit: Edward Felton

Education Outreach

That website was also the basis for an education programme that reached around 200 students across four Bristol schools in 2022. Across four sessions, students were asked to think about the possible performance of Hamlet in a number of different ways: for example, through West African forms of storytelling and through English modes of record-keeping (specifically, diary-writing).

Future Projects

Working on this project has influenced my work in a number of ways. I now have a better sense of what is involved in turning research into a creative output, and I’ve been inspired to keep reading and thinking about the early voyages of the EIC: I’m now writing an essay on those journeys for a volume of essays to be produced by Migration Mobilities Bristol, a Strategic Research Institute at the University of Bristol. I’m also working with Rosie Hunt from Bristol’s School of Education to develop a series of Shakespeare-related materials linked to the project and aimed at A-Level and GCSE students.

The Hamlet Voyage performed at the Bridewell Theatre, London. Image Credit: Dan Fearon

The Hamlet Voyage performed at the Bridewell Theatre, London. Image Credit: Dan Fearon

Even if it never happened—and I keep changing my mind over whether it did or didn’t—this performance of Hamlet off the coast of Sierra Leone is a wonderful story to think with, posing questions concerning the social dynamics of shipboard spaces; the place of Shakespeare in histories of globalization and imperialism; and the role of theatre in diplomatic and cultural exchange. Among all the video calls I held during the pandemic, the one with Ben in January 2021 was by some distance the most consequential.

Dr Laurence Publicover is a Senior Lecturer in the Department of English with research interests in Shakespeare and other English Renaissance dramatists and in the relationship between humans and oceans. To find out more about Laurence’s research and The Hamlet Voyage, please email l.publicover@bristol.ac.uk

The Centre for Health, Humanities and Science: Who we are and what we do

By Professor Ulrika Maude, Director of the Centre for Health, Humanities and Science

The Centre for Health, Humanities and Science (CHHS) focuses on interdisciplinary and multidisciplinary research at the intersection of the humanities, health, medicine, and science. The CHHS was inaugurated in 2017 and it has almost two hundred members from across Bristol University’s six Faculties and from the NHS. It runs a regular research seminar with speakers from across the UK as well as from abroad, and hosts workshops, an annual lecture, public debates, mentoring lunches, funding workshops, postgraduate-led activities, and university-wide networking events.

CHHS members are at the forefront of developments in medical humanities research, disseminating their results through academic publications, events and public engagement activities. With the support of the Wellcome Trust and the Elizabeth Blackwell Institute, the CHHS has provided seed-corn funding for a diverse range of research projects, including grief and mourning; the senses; chronic conditions and their narratives; and health and illness in colonial film archives.

One CHHS seedcorn-funded project, Becoming Elizabeth Blackwell, centres on the Bristol-born doctor and social campaigner Elizabeth Blackwell (1821-1910) – the first British woman to be registered as a doctor by the General Medical Council, in 1859. The project has brought together Bristol academics, a playwright and theatre director, medical students and others to produce a playscript that will re-tell and celebrate Blackwell’s life and achievements.

Several CHHS members are currently involved in collectively writing a book on Key Concepts in Medical Humanities (forthcoming, 2024), which will provide a critical introduction to concepts such as ‘health’, ‘illness’, ‘contagion’, ‘feeling’, ‘neurodiversity’, ‘disability’, and ‘dying’, as well as offering chapters on key methodologies such as ‘Black Health Humanities’, ‘Graphic Medicine’, ‘Medicine and the Arts’ and ‘Narrative Medicine’. ‘Health’, for instance, is by no means a transparent concept, and the CHHS’s former Benjamin Meeker Professor, Alexandra Parvan, argues that ‘health cannot be taken merely as the outcome of biological tests or a clean medical sheet, nor should it necessarily be understood as a state restricted to the those designated as clinically healthy.’ Rather, Parvan argues for a nuanced conception of health, one that is ‘accessible to all’.

Current large-scale research initiatives at the CHHS include Sensing Spaces of Healthcare, led by historian Victoria Bates. Poor hospital design has a negative impact on healthcare outcomes, and the project seeks to rethink the NHS Hospital through the body and the senses, focusing on the lived experience of patients, visitors, and hospital staff with the aim of improving hospital design. And a multidisciplinary team led by philosopher Havi Carel has recently won Wellcome Trust funding for a six-year project on Epistemic Injustice in Healthcare (EPIC), which aims to address inequalities. Havi says,

‘Some patients have reported that their testimonies and perspectives are ignored, dismissed, or explained away by the healthcare profession. These experiences are classified by philosophers as ‘epistemic injustices’ because, in some cases, they are based on prejudice and can jeopardise patient care and undermine trust in healthcare staff and systems.’

EPIC aims to identify practical measures that can be taken for the benefit of patients and healthcare practitioners alike.

The Good Grief Festival, inaugurated in 2020, focuses on supporting those affected by the shared experience of bereavement and grief – topics that have for too long been considered taboo. Led by Lesel Dawson (English) and Lucy Selman (Bristol Medical School), ‘Good Grief’ regularly organises talks, interviews, webinars and workshops for the general public concentrating on the ways in which the crushing experience of grief can be shared and managed.

Notable projects from recent years include The Heart of the Matter exhibition, which toured the UK in 2018. The exhibition grew from artist Sofie Layton’s residency at Great Ormond Street Hospital for Children and was co-organised by CHHS Advisory Board member and bioengineer Giovanni Biglino. The artworks in the exhibition were inspired by young patients with heart conditions – as well as their families and doctors – and it invited visitors to discover the extraordinary complexity, intricacy and beauty of the heart as an organ.

For many years now the Centre has been involved in medical education through the Intercalated BA in Medical Humanities, an optional one-year degree for students of Medicine and Veterinary Science, taught jointly by English and Philosophy and directed by Advisory Board member, John Lee (English). With a wide range of international collaborators and an International Advisory Board, our members are also active in public engagement work through collaborations with the NHS, patient groups, and charities as well as museums, public gardens, libraries, and other cultural organisations.

For more information about the CHHS, please contact the Centre’s administrator, Elizabeth Gourd (e.c.gourd@bristol.ac.uk).

Professor Ulrika Maude, Centre for Health, Humanities and Science Director

Black Lecturer – Philip Leverhulme Prize

By Dr Josie Gill, Associate Professor in Black British Writing, School of Humanities

With thanks to The Leverhulme Trust for their consent to republish piece in February 2023 newsletter on ArtsMatter platforms.

Fewer than 1% of professors at UK universities are black. The implications of this startling statistic have been much debated, and sociologists and educational researchers are increasingly studying the experiences of black academics. As a literary scholar and a black woman, I am interested in exploring narratives about black people in higher education in literature, memoir and life writing. While many such accounts exist in the US, there are far fewer literary and autobiographical representations of black British academic life, no doubt a reflection of the fact that there are, and have historically been, so few of us. Black British writing about UK education has tended to focus on the school level; for example, E.R. Braithwaite’s To Sir, With Love (1959), Dillibe Onyeama’s Black Boy at Eton (1972) and Beryl Gilroy’s Black Teacher (1976). 

Photograph of Josie Gill, smiling, looking off to the left.
Image Credit: Artur Tixiliski

I am using my Leverhulme Prize funds to write a book called Black Lecturer, which will bring my own experiences of working in higher education into conversation with fictional and non-fictional writing about black British experiences of education. I aim to illuminate the ways in which black academics move through university life, as a means to examine the institutional and research cultures that characterise twenty-first-century UK academia. This project includes a close look at the politics of race in my own discipline, literary studies, and how black British writing has been historically addressed within it. Using the history of the English department at the University of Bristol as a case study, my book will connect personal reflection with literary, disciplinary and institutional analysis to explore the significance of race in higher education.  

My approach to writing this book differs significantly from my previous work. I aim to draw parallels between the strategies, structures, affects and language that characterise my everyday experience as a black lecturer; literary methodologies; and the characteristics of institutional culture. The book will be organised around a series of themes which traverse these areas and will model, in its approach and structure, a methodology for literary research in which the archive is expanded to include my emails, where textual analysis includes institutional statements and departmental strategy, and close reading moves beyond text to include bodies and interpersonal interactions. I hope my research will contribute to ongoing discussions about how we study English Literature and demonstrate how accounts of the black British experience can inform this debate. 

Talking about grief: how can we lift the taboo?

This article was originally posted on LinkedIn on 10 October 2022.

On World Mental Health Day, 10 October, we connected with Dr Lesel Dawson, Associate Professor in Literature and Culture at the University of Bristol, and Arts and Culture Lead for The Good Grief Festival, to hear about her research into grief and creativity.

Throughout history, humans have created art to honour the life of someone who has died—from ancient Greek and Roman gravestones to Victorian hair locks, from Renaissance elegies to modern memorial tattoos. While forms of mourning change over time and from culture to culture, our need to express grief and have our pain recognised and witnessed persists.

However, over the last century, we have lost many of the communal and creative ways that we come together to grieve, and with them perhaps, the confidence to support bereaved people we know. Worried about saying the wrong thing, we can slip into tired clichés or avoid the subject altogether, so that people who are grieving often feel lonely, stigmatised, and isolated.

Good Grief

We set out to help change this with Good Grief: A Virtual Festival of Love and Loss, led by founder Lucy Selman (co-lead of the University of Bristol Palliative and End of Life Care Research Group) and initially funded by a grant from the Wellcome Trust. The festival brings together grief therapists, academics, palliative care doctors, comedians, artists, and musicians to have open and honest conversations about grief, death and loss, aspiring to provide a platform for bereaved people to share experiences and facilitate a shift in how we approach and understand death and grief. Integrating the arts into the festival has both helped engage audiences and highlighted the individual and varied nature of grief. Our new project, Good Grief Connects aims to further this work by collaborating with partners (Compassionate Cymru, The Ubele Initiative and Compassion in Dying) to deliver and evaluate three pilot projects that will help support diverse communities talk about death and grief and access the support they need.

My work as the Good Grief Festival’s Arts and Culture Lead has impacted my research, which explores the role of creativity and the imagination in grief. Drawing on the work of Robert Neimeyer, I explore the way bereavement shatters our ‘assumptive world’, the beliefs and assumptions that frame how we conceptualise ourselves and our futures. As part of a process called ‘adaptive grieving’, creativity can help enable us to confront the painful reality of our loved one’s death and begin to integrate the changes that follow our bereavement. When we create art, we both share our experiences with others and act as our own witness in a self-dialogue which can be illuminating and therapeutic. In this context, our imagination is both a source of suffering and a means to process what has happened.

Grief and art

Drawing from an Art Therapy Session showing red hearts and yellow and gold stars
Artwork from an Art Therapy Session with Victoria Tolchard

Creative expression can be particularly valuable for children, who sometimes struggle to express their feelings verbally and often learn and communicate through play. Children grieve as deeply as adults and need to be allowed to express their feelings and told the truth in age-appropriate language so they can be part of their family’s narrative of what has happened. Toys, paint, clay and sand can provide non-verbal forms of communication, and allow children a safe, structured space to explore difficult feelings and tell their story.

These ideas are explored in two Brigstow-funded short films which I co-produced: Children, Grief and Creativity, created with psychotherapist Julia Samuel MBE (Founder Patron of Child Bereavement UK and bestselling author) and animator Gary Andrews (creator of ‘Doodle-a-Day’ and Finding Joy), and Children, Grief and Art Therapy made with Art Therapist Victoria Tolchard and Gary Andrews.

Grief education

While the Good Grief Festival has supported more open conversations about bereavement, we need more foundational, systemic changes if we are to transform a culture that still treats grief and death as taboo. One long-overdue change is to make grief education a statutory component of the curriculum in all four countries of the UK. As charities and organisations (such as Child Bereavement UK, Childhood Bereavement Network and Winston’s Wish) and psychotherapists, psychologists, child specialists and academics have demonstrated, grief education can help destigmatise grief and death, enabling children and young people to understand bereavement and better support friends and peers who are grieving. Schools are uniquely placed to prepare children for difficult life experiences, and the charity sector has developed a wealth of lesson plans, resources and expertise which make mandatory grief education both timely and actionable.

To support this change (and the work that has already been done), Rachel Hare, Lucy Selman and I are working with Tracey Boseley (National Development Lead for the Education Sector for Child Bereavement UK) and Alison Penny (Director of Childhood Bereavement Network and Co-ordinator for National Bereavement Alliance) on a review that brings together research on the benefits of grief education, explores the most effective ways to integrate the topics into schools, and considers issues with teacher training and other obstacles. Statutory grief education would be an effective and efficient way to help school pupils talk about death, preparing them to manage their own grief and support others, and fostering the development of a more compassionate society.

More information:

A Map of Medieval Bristol

By Professor Helen Fulton, Chair in Medieval Literature, Department of English

Image of the cover of 'Bristol in 1480'
Cover of Bristol in 1480: A Medieval Merchant City

One of my research directions is aimed towards medieval towns and urban culture, especially in the region of the March of Wales. Some while ago I collaborated on an Arts and Humanities Research Council (AHRC) project on medieval Chester which resulted in an online map of the medieval streetscape of the city, with links to its major churches and buildings. This inspired an interest in the possibilities of mapping ­­– both digital and hard copy – as a tool for research, education, and public engagement.

As a Trustee of the Historic Towns Trust (HTT), which produces hard-copy maps of historic towns throughout the UK, I took on the leadership of a project to produce a map of medieval Bristol, which was published in December 2020. I worked in partnership with Professor Peter Fleming at UWE, a renowned expert on medieval Bristol, and a team of local historians and archaeologists from the city of Bristol. Our first job was to decide roughly what period of time would be covered by the map – it is possible to layer maps on top of each other to show features and streetscapes from different periods of time, and some of the HTT maps have done exactly that. For Bristol, however, it made sense to focus quite precisely on the year 1480, when a well-networked Bristolian, William Worcestre, made a survey of the city of Bristol on foot, literally counting how many paces there were between landmarks. Using this survey, together with many other historical records of the city, the team was able to reconstruct the layout of Bristol in 1480, along with its major churches, abbeys, gentry houses, taverns, industrial buildings, and even its water supply.

The production of this unique map was funded partly by public donations and partly by a generous grant from the University of Bristol Knowledge Exchange fund. We used the money to employ a research assistant, Dr Bethany Whalley, who researched the history of the various streets and buildings that are described in the Gazetteer on the back of the map. Crucial information was also supplied by our team of local experts, each of whom had specialised knowledge of the city’s history. I co-wrote the introduction to the map, describing the work of William Worcestre, and edited all the textual information on the map, including the street names and other words on the map itself as well as the Gazetteer. We worked closely with the HTT cartographer, Giles Darkes, whose beautiful artwork makes all the HTT maps stand out not only as useful reference guides but as works of art.

Despite being published during a pandemic lockdown, the map has sold very well and has been the topic of numerous public lectures, in person and online. The map was launched during the Fifteenth Century Conference in early September at St James Priory. We are now planning a workshop at the annual Historical Association conference to be held in Bristol in May 2022, and we are working with an educational consultant to produce a study package for Key Stage 2 students.

National Poetry Day 2020

National Poetry Day is celebrated every year in October, encouraging people to discover, share and enjoy poetry in all its forms. To celebrate, we caught up with Dr William Wootten and Craig Savage of the Bristol Poetry Institute.

Why do you think observances such as National Poetry Day are important?

Craig: Poetry and public days of observance in England have been connected since John Dryden was appointed to the first poet laureateship. But long before that, from Demodocus in Ancient Greece, to the Courtly poets like Ben Jonson that preceded Dryden, poetry was aligned with moments of public ceremony, both momentous and solemn. National Poetry Day catches something of that, as well as what Bristol’s mayor, Marvin Rees, said recently about the Bristol City Poet, that ‘Journalists capture facts but poets have the ability to speak to a city’s soul’ – the sense being that poetry has a role in offering a deeper understanding, a concentrated parsing, if you will, of current affairs. Which is not to say that poetry can’t also be private or intimate but to acknowledge poetry’s public face.

What role does the Bristol Poetry Institute play within the University and in the wider Bristol community?

Craig: Put simply, the Bristol Poetry Institute exists to be a voice for poetry. This may be the research, practice (in its widest sense), or reading of poetry, or any other aspect of poetry that engages communities, introduces poetry to a wider constituency, or encourages thinking about poetry. It’s our goal to collaborate and engage with our university and city communities on matters of poetry.

Some people took to new creative endeavours during lockdown, from baking and crochet to song-writing or learning a musical instrument – what advice would you give someone wanting to give poetry a try?

William: You wouldn’t start song-writing without listening to and loving a host of songs first, so I’d suggest starting out by reading and listening to as much poetry as possible, maybe learning some of your favourites by heart. Then, I would approach it as you would all the other creative endeavours you mention – as a craft. Try writing in different forms and styles, especially, but not exclusively, those used by poets you particularly like, and give yourself technical challenges. See if you can write something someone else might enjoy, but don’t fret about getting published. Philip Larkin once advised: ‘Supposing no one played tennis because they wouldn’t make Wimbledon? First and foremost, writing poems should be a pleasure. So should reading them, by God.’

Who is your favourite poet and why?

William: Different poets suit different moods and different times in one’s life, and I’ve had crazes for all manner of poets over the years, so I won’t nominate an overall favourite. This year’s craze, though, is the early twentieth-century Italian poet Guido Gozzano. Gozzano’s best poems combine beauty and melancholy in a way that can be oddly reminiscent of Walter de la Mare, whose poems I happen to be editing. They also sound modern and intimate while employing traditional forms, a combination I often like to aim for when writing poems myself.

Craig: Controversially: Bob Dylan. Because, for me, poetry is meant to be performed, to have an audience, to be a popular art, to understand the demotic language, to be as much a thing of the body as the mind, and to draw through its breath the tradition in which it exists. To me, Dylan is our Homer, our Shakespeare; the figure of the 20th and 21st century that, like those great artists I mention, reaches across high and low culture to the widest possible audience, to tell, with great range and intensity, some of the truth.

What poem do you feel could help people find solace in these strange times?

William: There’s lots of poetry being written explicitly addressing lockdown and the corona virus, for instance the poetry at https://poetryandcovid.com/. But in poetry as in life, it is nature and love that tend to solace most:

Thanks to the human heart by which we live,

Thanks to its tenderness, its joy and fears,

To me the meanest flower that blows can give

Thoughts that do often lie too deep for tears.

That’s the close to William Wordsworth’s ‘Ode: Intimations of Immortality’, a poem and a poet to turn to in a crisis.

This year marks the 250thanniversary of the death of Thomas Chatterton, a Bristol-born poet who died at just 17. What impact did Chatterton have on Bristol, and what’s the most intriguing fact you’ve learned about his short life?

Craig: Chatterton embodied for the Romantics that collision of prodigious talent and prodigious tragedy that has come to represent the Romantic Poet and the Romantic genre in general. I’m not a Romantic scholar but I would guess that Chatterton’s Bristol association must have added significance, for Wordsworth and Coleridge, to their publication of Lyrical Ballads in Bristol in 1798 – which is to say that Chatterton laid the groundwork for Bristol’s incredible Romantic heritage. It’s not a fact, but the most intriguing thing I’ve learned about Chatterton is his connection to St. Mary Redcliffe and the fantastic opportunities that site offers to engage with the history of Chatterton in Bristol. One great way to do this, especially around National Poetry Day, is to download the Romantic Bristol app from our website. The app, developed by our colleagues Professor Ralph Pite and Dr Rebecca Hutcheon, maps out, for example, a self-guided walking tour around Redcliffe of Bristol’s Chatterton heritage.

For anyone interested in finding out more, how can they get involved with the Institute?

Craig: We regularly offer poetry events. For National Poetry Day we have Poetry Karaoke and then, in November, we have our Annual Reading, which will feature American poet Claudia Rankine and Bristol’s former City Poet Vanessa Kisuule. Aside from our events, we’re keen to hear from those working with poetry – schools, community organisations, poets, poetry academics – and to engage in a dialogue with them about how we might collaborate.